November 2018, Kade asked me what the 6th month of the year was. It was around 5 months since his IVIG had been stopped due to the national shortage. "You tell me?" I said. Considering he had been able to recite the months of the year since the age of around 4, like most children. … Continue reading For a second

Life is good, there I can say it. My son smiles and laughs. He rides his bike, he can go for short walks. His memory is improving at a dramatic rate of late, and his tics are barely noticeable. There is no pain in his world any more and he laughs at my attempts to … Continue reading Once more

A thousand days, more probably, I've learned so much, seen Kade make what seemed impossible moves toward recovery and watched as he navigated through his own personal hell. I have now heard that Kade's response to treatment was anecdotal. Makes me wonder how many others have had this anecdotal response and it has been disregarded … Continue reading Back Again

What a year it has been. This time last year with regular treatment Kade was attending school 3.5 days a week. We had been on holiday where he swam, walked in the woods and joined in with board games at night with family. He still had low energy but absolutely no where near what I … Continue reading He is home

Kade is over 3 months post ivig. Thanks to Dr G my son has more energy, he enjoys cooking, going to his tutor lessons, playing his computer and visiting relatives. He even went to a show at the Playhouse in Edinburgh with his Nanny, something a few months back I never believed would have been … Continue reading In a heartbeat

Kade is around 12 weeks post IVIG. His IVIG was withdrawn due to a national shortage. IVIG gave my son access to life, with out it he exists in a world of mental and physical anguish. While receiving regular treatment my son went from wheelchair to walking, ticcing to barely ticcing at all, from excentric … Continue reading A Different Way

Imagine your child in turmoil, Imagine they are sick, Imagine no one believes you, Imagine they need help quick. Imagine your child's sorrow, Imagine chronic pain, Imagine inflammation right inside their brain, Imagine your child disappearing, Imagine, right in front your face, Imagine wondering where they are, Imagine what they've lost, Imagine they will grow … Continue reading Imagine

Finally I can say it, progress is being made. Almost two weeks into changing Kade's diet again and removing all foods he is allergic to has made another positive difference, on top of the previous gains from just removing sugar and processed foods. Kade's throat clearing tic is no longer constant. It is barely noticeable … Continue reading Get back up

Kade is now 8 weeks post IVIG. The diet changes have kept him on a level where he still has no anger or frustration. Bloods are back and he has multiple food allergies. Coxsackie and bartenolla are positive also. Finally answers, something to work with. Kade does not have lyme. I am astounded at Dr … Continue reading Cannot Wake

Two and a half weeks ago we visited Dr G. It's been a strange few weeks, on his advice we were to start Kade immediately on a no processed foods, sugar free diet and give him some supplements just as a starting point. Bloods were discussed and are now arranged to be drawn a week … Continue reading How he will be