Today we sit in the children's ward at a hospital closer to home. Only a 20 minute drive. We have the whole bay to our selves. It's the 29th of May 2017 and Kade is having his fifth round of IVIG. No more traveling to Edinburgh which takes an enormous pressure off. I was anxious … Continue reading Everything and Nothing
Tuesday the 31st of January was the first day of Kades IVIG. We rode in the taxi to the hospital at 8am. Kades body crashed around, the whole car shook continuously, it took an hour to get there. The ward was by far the best experience my son had had so far in his journey. … Continue reading At Last
As I write this I only hope it can help others. I know how often I searched (I still do), read blogs, articles, anything I could relate to really saw me through the darkest days. Typing the same words into Google but in a different order, with some insane hope that I would find more … Continue reading Granted
Desperate for Kade to be seen by a doctor I googled private health care in the UK. I don't even remember the name of the company. I called a number explained that I wanted to see a doctor who had experience with PANS/PANDAS syndrome. There was a doctor in Cambridge. It would be an over … Continue reading The boy on the train.